8 dry nights! I'm amazed! And thrilled. Life is not without accidents, but I'm quickly realising that Oceana likes making it to the toilet. She had two accidents this week (day time, same day). One was probably my fault, I told her to go on her own, but she couldn't get her pants down in time. The second was her fault. She went halfway in her undies.
I had the oppurtunity tell Joshua's entire story (the 30+ minute version) to two groups of people in the last 4 days. It's getting easier to share his story - I think mainly because I've told all of you so many times. It's refreshing that people still want to hear his story. It's refreshing that his legacy lives on. My hope and prayer is that if a family like Verna - Noah's grama, or Steve & Marie - Elijah's parents should google, "encephalocele story" or "encephalocele son or daughter" they would be brought here.
When I first discovered Joshua's diagnosis, I desperately wanted to read someone else's story. I was sick of statistics and medical explanations. I need to know what someone else had gone through. I didn't find anything. I found other issues, but not Joshua's.
One of my main reasons for having this site is to put a story out into the world about how to carry through a pregnancy/life/death of a child with an encephalocele. It is so reassuring to have met other people who's sons have had encephaloceles (the count is at three, in person and in blogosphere).
I went to the SANDS meeting the other night. It's for parents of infant loss - premature birth, stillbirth, birth defects, etc - and it was so refreshing. I was afraid it might be a whole lot of hand holding, tears, and geeky poems (not my style, in case you haven't picked that up yet!). Instead it was 5 grieving momma's, sharing about their children. There were some tears, but for some of us the pain is still very fresh (one mother had lost her son in late July of this year).
I am so glad I went. I will be going back. The meetings are only once a month, but at least they are always on.
We just got word from the team Havalah's boyfriend Dahvede took to the Solomon Islands. Three of the young girls on the team have contracted malaria (not sure how, since they were on anti-malaria pills). Please keep these girls in your prayers. They come home next week.