Wednesday, March 19, 2008

Eva Janette and a few other thoughts

Baby Eva - precious daughter of Chrissy and Vinnie from my sidebar - arrived is still with her parents. Chrissy and Vinnie are a bit disappointed that her medical situation is more severe than they thought it was. She's no longer a candidate for heart surgery, as like Joshua, she most likely would not survive the surgery. Pray for that as they wade through the next days, weeks, months - it's so hard to get worse news when you're already IN bad news. Eva's such a cutie - with SCADS more hair than Joshua and Oceana combined.

Matt and I went to the tattoo shop this morning. Matt made an appointment the day Joshua's cele ruptured (just a few hours before) to have a tattoo done this morning. It's very special to us - inspired by Joshua, with his initials incorporated in it. It was a very special morning. I sat and watched - as well as finished chronicling Joshua story "The End". It's the story from the morning before his cele ruptured to when we let him go to the funeral home. I wanted to have all the details, because I knew that with time my memory would fade and the details wouldn't be there anymore. Probably it will end up in the 'Joshua book'. When I say "I'm gonna write a book" I'm not kidding. And I'm not flapping my gums either. I really feel it's important to write about Joshua - about his story.

I'm hoping to write it all while its fresh in my mind. I don't know if it will be done any time soon - but that's the plan.

Also in the "I'm gonna do" pile is to cut the funeral video down into some smaller increments that I feel are important and very special for you all in blogland to enjoy. I don't have it here at the house just yet, but hopefully by the weekend. There was more than one mention of the blog at his service - which I found funny in a way. To me it was just something I did - but it became so much more than that in Joshua's life. Thank you all for loving my little boy.

19 comments:

  1. I'm sure I'll be one of many to say so, but I look forward to the book. Having his story all wrapped up in one place to be read over again just continues his ability to touch people's lives. Will we see pictures of the tattoo?

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  2. Susie - I would love to see pics of the tattoo(s?)! Also - you should absolutely keep writing. It may have been cathartic for you to do so during Joshua's time with you - but you are a talented writer! Keep writing. look at all the lives you touched by this blog in sharing Joshua's life - you could do that and more with a book. Surely one of the 'bloglanders' can connect you to a publisher.
    Still in my prayers and still looking forward to reading your blog each day. Much love to you all.

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  3. Susie,
    THANK YOU for sharing Joshua with us & allowing us to fall in love with him.
    God Bless,
    Beth in Texas

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  4. No problems at all, sweetheart. :) Loving your precious baby was the easiest thing in the world to do.

    Will we get to see a picture of Matt's tattoo, or is it too sacred?

    I read this last night and how my heart rejoiced for Joshua!

    "No longer will there be any curse... They will see His face, and His name will be on their foreheads." Revelation 22:3a&4

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  5. So, I'm wondering, did you both get the tattoo or just Matt? I'm also wondering how Oceana is doing. I know you probably don't feel like answering questions which I completely understand. I am thinking about you all the time. Joshua touched my life so deeply, you have no idea, and we are so far from each other.

    Love, Dana in Virginia

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  6. God Bless Susie...

    I marvel at your strength and wisdom. I think writing a book is a beyond wonderful idea...Joshua beat the odds...he defied doctors...he lived with grace and beauty....I think writing a book honors him and shouts to the world, "There is a God. He is merciful..He is the Great(est) Physican!"

    Good on you, Susie. God bless you all during this new chapter. I am thinking of you all often!

    Trisha Jurgemeyer
    San Diego

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  7. Susie,

    I love the tatoo that is inspired by Joshua. Such a permanent memory of a most precious little boy. I miss him so much as he was my morning boy I visited from his birth. He touched my heart so much. I am so glad you will be writing his book. I know you will do this, no question. His video you posted is absolutely breath taking and your words at the end were straight from your heart of a mother. Joshua's life is such a ministry and incredible testament of God's love for his children. He is the most special baby I have read about and prayed for in blogland.:) Seeing him in action in the video clips with hiccups and that SMILE,
    just melted my heart and made him more real to me. Thank you so much for sharing your little miracle with me and for opening the eyes to my heart so much more. I look forward to the video increments that you are planning to post. Please know that my prayers won't stop for you, Matt and Oceana as you walk through this valley you are in. I know that God will bring you through in His time, and ask Him to be gentle with your hearts.
    Joshua is only a memory away in your hearts. I am thankful Jesus is holding him now, but I wish it was you still.

    Love and Prayers, Laurie in Ca.

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  8. The way you write so beautifully I am sure that your book would be a huge success. And I am also sure it would be just one more way that God is using Joshua's precious little life to serve him, because your faith and love of Christ would most definitly come through in a book, and I am sure, just like with this blog, Christ's love would reach so many others. You are a truly amazing woman and I am inspired by you. I have loved reading your blog, and continue to pray for your family.
    In Christ's beautiful Love,
    Mashel

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  9. The way you write so beautifully I am sure that your book would be a huge success. And I am also sure it would be just one more way that God is using Joshua's precious little life to serve him, because your faith and love of Christ would most definitly come through in a book, and I am sure, just like with this blog, Christ's love would reach so many others. You are a truly amazing woman and I am inspired by you. I have loved reading your blog, and continue to pray for your family.
    In Christ's beautiful Love,
    Mashel

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  10. Susie, I don't know how I came to your blog but I do know that I was led here to pray for your family. I read your entire blog over the last few days and I am amazed at your strength. I prayed that Joshua wouldn't go "home" so soon but I believe like you that he's whole and waiting for you there in heaven. May God bless and comfort you.

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  11. Susie & Matt,
    Thank you for sharing your family and Joshua's story with us all on the blogland. It is the most moving & touching thing we have ever watched! We saw it over and over again and in tears always ...
    We are heart aching for your losses but also cherishing the time you had with Joshua. He's a beautiful angel and may he looking down on you from heaven.

    Although Joshua's life in this world is short, but he has touched and changed many people most adults could ever dreamed of. Your wisdom & courage are way beyond your age so be proud of what you have given to Joshua.

    We have a little son who's only 9 month old and he doesn't understand this. When he grows up a bit, we will sure show him the Life Song of Joshua which touched the deepest part of his mommy & daddy's heart...

    May peace be with you all.

    -Oliver
    Sydney
    Australia

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  12. I would love you read a book about his life.. Let us know when you have finished it..
    Thank you for letting us into your life and letting us share your journey with you family..

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  13. Bless your heart and your precious son.....has done more for countless people than can ever be imagined........great will be his reward because his story points to Jesus.

    When I read your blog......I have a hard time with words.....because your heart shines though in such a way it leaves one speechless.

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  14. Susie,
    I don't know if you're familiar with blurb.com...but you can slurp your blog (pictures included) and they will bind into a hardback book for you. It's relatively inexpensive and quick...I'd be honored to help financially in that way and would actually love a copy of Joshua's story...he has touched me in a way that is indescribable. Email me.

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  15. Thank you for sharing your little boy and your lives with us;) He is missed and always loved and always remembered...

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  16. Please do write that book Susie. I know it will bring great comfort to those who may one day be travelling the same journey.

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  17. Susie ~ I also find it interesting that the blog was mentioned several times in the service ... isn't it crazy how this thing called the internet has brought people together from all over the world to love and pray for a baby we would have otherwise never known? You and your sweet family have become such a big part of my thoughts over the past couple of months, and on the day of Joshua's service, I was there with you in spirit remembering his courageous life.

    Thanks for sharing all the photos. I look forward to seeing the video and reading the book when you finish it. I know Joshua (and the Lord) are honored by how you and Matt have chosen to walk this road with faith and determination.

    Peace and grace ...

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  18. Oh, how this blog entry touched me.

    I look forward to seeing the videos and reading anything you wish to share with us.

    We love Joshua, and you and Matt and Oceana, too.

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  19. I was wondering if there was someway to preserve this blog as a memorial and then I read Ginger's comment. I think that's a wonderful idea and I would love to purchase a copy for us if you decide to do it. I love your blog family!

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