An area midwife. She's doing a paper on palliative care for newborns (ie. Joshua's type of care). She asked me about my experience and about what was good and bad. So that was really good. I'm hoping that what I've told her will be helpful to other parents and families in the long run.
It has been my hope all along that our story/situation/experience/knowledge will be a help to doctors, nurses, midwives, researchers, parents and families.
Hey Marie - I told her about you and baby Elijah too. :)
And she agreed. Most babies with neural tube defects are aborted. Geez....
No wonder doctors and nurses didn't know what to do for Joshua. All the Joshua's of this world are being killed off.