Oceana and Miles playing. They learned "share" this week. The word. Not the action - what are you crazy?
Joshua and Mommy having a cuddle this morning.
Joshua's cele is getting worse. I don't know how else to say it. I wish I didn't have the "hang the crepe paper" - or warn you a bit. But his cele is dangerously full and stretched. And I don't know what to think. We had some tears this morning with our nurse and our friend Bryce & Christina. That's right, even our nurse cried. It wasn't anything in particular, except that we could see it was getting worse - and worse means demise for Joshua, eventually. Every week or two we have a reminder of how serious and ghastly Joshua's situation is - and we fall apart for a few minutes. It's scary to have him here and know that we might not have him next week. We might - but we might. And it's hard to wait for something that doesn't have a date on the calendar.
I found this quote on Sarah Funk's site just now, and I think it sums up what we've been trying to do for Joshua. I plan to get in a lot more cuddles, hugs, and kisses. I don't ever want to regret NOT holding him more.
"And in the end, it's not the years in your life that count. It's the life in your years." - Abraham Lincoln