tag:blogger.com,1999:blog-7029247928009946691.post2716113108246395298..comments2023-08-26T09:53:06.838-04:00Comments on Be Strong and Courageous: A few commentsAnonymoushttp://www.blogger.com/profile/00498667136217421642noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-7029247928009946691.post-32159640084904231012008-03-11T14:56:00.000-04:002008-03-11T14:56:00.000-04:00He does have a perfect and whole (and beautiful, m...He does have a perfect and whole (and beautiful, may I add) soul and spirit, and when God calls Joshua to heaven, I have no doubt in my mind that God's going to say, "Well done, My good and faithful servant!" Joshua has touched so many people and it's all been for God's glory and the furthering of His kingdom. I'm praying for you guys!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-49320021876990057882008-03-10T01:14:00.000-04:002008-03-10T01:14:00.000-04:00This post is perfect and beautifully written. Josh...This post is perfect and beautifully written. Joshua is perfect in Gods eyes and I think he is so precious. His spirit and his soul are beautifully and wonderfully made by God. How wonderful it is to know that he feels your love all around him. He smells you, he tastes your milk, he is bonded to you. He will never know cruelty and sin, he is an angel of God placed in your loving care. How good is this? And you are so right Susie, it does suck to be the ones left behind in the wake of this but I know that the God we trust will be the same God that will bring you through when that time should come. Until then, soak in the pure love that Joshua is teaching you. I pray for your daily strength and blessings. You bless me.<BR/><BR/>Love, Laurie in Ca.Laurie in Ca.https://www.blogger.com/profile/15599832324966859946noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-23645431669931615342008-03-09T23:42:00.000-04:002008-03-09T23:42:00.000-04:00Susie~I recently found your blog....I must say, I'...Susie~<BR/><BR/>I recently found your blog....I must say, I'm totally blown away! Not that age is any precursor to how mature or immature you are, but in your situation, you strike me as incredibly mature. Your words have touched me. I read back through several of your posts and am struck by the maturity and trust in the Lord you show. I tell you, when I was 22, I was NOT like that!!!!<BR/><BR/>How God has changed me!!! And I imagine, how God is changing you too.<BR/><BR/>I just want you to know that your baby boy is incredibly beautiful. He's got beautiful lips, beautiful skin, a perfect nose, gorgeous ears.....you are so blessed.<BR/><BR/>I'll pray for you to be able to continue to trust, even when it looks like the end. I myself have found that God has great mercy and tenderness, and is intensely present with moms who have lost babies or have a terminal diagnosis for their babies. This has been my experience, and I think you have noticed that too!<BR/><BR/>Press on. You can walk this path. He gives great strength along the way, doesn't He??<BR/><BR/>God bless you!<BR/><BR/>Leanne In Longview WALeannehttps://www.blogger.com/profile/07790757525000409229noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-56930160359163633632008-03-09T21:51:00.000-04:002008-03-09T21:51:00.000-04:00Susie,I'd like you to know that I am so inspired b...Susie,<BR/>I'd like you to know that I am so inspired by your strength and wisdom. I can not imagine being in your shoes and how painful it must be, but your faith in God is incredible!! I'm praying for you and your family, I'm a firm believer in the power of prayer and know that God has many blessings to come for you and your family- even with your baby's condition. I am humbled and brought to tears every time I read your blogs and it is a big reminder to always be thankful!<BR/>God bless you and your family and stay strong in your faith in Him!!<BR/>Bri Schleiger (from Jan08 on babyfit)SchleigerFamilyhttps://www.blogger.com/profile/00547163405877648251noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-54873405512508488032008-03-09T20:53:00.000-04:002008-03-09T20:53:00.000-04:00What truth.What truth.Rhondihttps://www.blogger.com/profile/17366669958994980858noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-21008157332027320112008-03-09T20:34:00.000-04:002008-03-09T20:34:00.000-04:00May God continue to fill you with wisdom and the t...May God continue to fill you with wisdom and the truth to share it....all for His glory!<BR/><BR/>I love the picture of the three of you at the beach, it is priceless!Given Gracehttps://www.blogger.com/profile/17011375757805878028noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-4674744293080775302008-03-09T18:45:00.000-04:002008-03-09T18:45:00.000-04:00Half a Heart--Author UnknownIt's a beautiful day u...Half a Heart--Author Unknown<BR/><BR/>It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. <BR/><BR/>One of the sweetest angels say to Jesus "I dont want to leave, I like it here, and I will miss you". <BR/><BR/>He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says "how about if you leave half of your heart here with me and take the other half with you, will that be okay?" <BR/><BR/>The angel smiles and says "I guess that will work". <BR/><BR/>But the little angel is still a little scared. He asks "will I be okay with only half of my heart?" <BR/><BR/>Jesus replies, "of course you will, I have other angels there that will help out, and you will be fine."<BR/><BR/>Then Jesus gives the angel more details about his plan, he says "when you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart". Enjoy your time with your family, play and laugh everyday and when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."beccahttps://www.blogger.com/profile/10410108700961287983noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-73883743875348287432008-03-09T18:12:00.000-04:002008-03-09T18:12:00.000-04:00I'm sure you have heard this song before but when ...I'm sure you have heard this song before but when I read your post this song came to mind! Praying it blesses you as the many times over it has blessed me when facing situations we don't understand!<BR/><BR/>Love you guys!!!<BR/><BR/>PAM and Family<BR/><BR/><BR/>"Held"<BR/><BR/>Two months is too little<BR/>They let him go<BR/>They had no sudden healing<BR/>To think that providence<BR/>Would take a child from his mother<BR/>While she prays, is appalling<BR/>Who told us we'd be rescued<BR/>What has changed and<BR/>Why should we be saved from nightmares<BR/>Were asking why this happens to us<BR/>Who have died to live, it's unfair<BR/><BR/>This is what it means to be held<BR/>How it feels, when the sacred is torn from your life<BR/>And you survive<BR/>This is what it is to be loved and to know<BR/>That the promise was that when everything fell<BR/>We'd be held<BR/><BR/>This hand is bitterness<BR/>We want to taste it and<BR/>Let the hatred numb our sorrows<BR/>The wise hand opens slowly<BR/>To lilies of the valley and tomorrow<BR/><BR/>This is what it means to be held<BR/>How it feels, when the sacred is torn from your life<BR/>And you survive<BR/><BR/>This is what it is to be loved and to know<BR/>That the promise was that when everything fell<BR/>We'd be held<BR/>If hope if born of suffering<BR/>If this is only the beginning<BR/>Can we not wait, for one hour<BR/>Watching for our savior<BR/><BR/>This is what it means to be held<BR/>How it feels, when the sacred is torn from your life<BR/>And you survive<BR/>This is what it is to be loved and to know<BR/>That the promise was that when everything fell<BR/>We'd be held<BR/>[Repeat Chorus]Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-67397503099975598302008-03-09T16:17:00.000-04:002008-03-09T16:17:00.000-04:00I hope you don't change that at all. Perfectly put...I hope you don't change that at all. Perfectly put! My baby Cousin had trisomy 18. She was the most beautiful baby I have ever seen. She simply glowed, even though her skin was as pale as a china doll. The Spirit shines through. her spirit and God's, as surely the Holy Spirit is resting in these babies.<BR/>Joshua knows who you are. He just can't express it. Your smell is a comfort to him.**bree**https://www.blogger.com/profile/06788784698252974277noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-91580868705466623832008-03-09T12:57:00.000-04:002008-03-09T12:57:00.000-04:00It is because of your love and wisdom that Joshua ...It is because of your love and wisdom that Joshua has done so well for so long. Don't ever give up on him, YOU have made his life so amazing, thank you for sharing you wonderful son with us!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-63901630073845449512008-03-09T11:05:00.000-04:002008-03-09T11:05:00.000-04:00That was absolutely beautiful! And Joshua is a bea...That was absolutely beautiful! And Joshua is a beatiful baby boy! Thank you for sharing your faith with all of us and reminding us of the Truth.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-46498458555064788602008-03-09T09:19:00.000-04:002008-03-09T09:19:00.000-04:00Okay this one is even more awesome. You will have ...Okay this one is even more awesome. You will have MANY chapters in your book. You are so precious and I love you so much!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-24219330347695210442008-03-09T08:20:00.000-04:002008-03-09T08:20:00.000-04:00I probably have never commented before I have no i...I probably have never commented before I have no idea. I am not a big commenter. <BR/><BR/>My son was born 15 weeks early and spent his whole 8 1/2 months in the NICU. I was talking to my friend earlier and we were talking about Johnathan. I always saw Johnathan for himself. Not the broken human being that he was. The tubes the wires. That wasn't my baby. He had this little personality that shown through. Even when he was only 2lbs. I can understand what you are saying about just seeing your child. Your child is not a diagnosis. He is a human being. His name is not encephalocele. Itis Joshua. <BR/><BR/>I really got upset when I would take family members up to see my son. They would focus so much on the wires and tubes and such and not focus on the sweet child that was attatched to all of them. <BR/><BR/>He was never wire or iv free except the day God called him Home. I wouldn't change anything about my experience with my son. All of our prayers were answered. We celebrated every day and every accomplishment. My faith had grown so much because of Johnathan. Or rather I should say I found I actually had faith. I trusted every decision the Lord made with him. <BR/><BR/>God was there he has picked me up several times and will pick me up several more time concerning my son. <BR/><BR/>He is there for you as you know and there will be days you get mad and angry and just totally can't deal with everything and God is right there saying take my hand dear child. You just have to accept it. Sometimes I did, Sometimes I didn't. It was the times that I didn't that I suffered the most. I wasn't at peace. <BR/><BR/>This is getting lengthy and I tend to ramble. <BR/><BR/>And I just wanted to say I understand. <BR/><BR/>BobbieBobbiehttps://www.blogger.com/profile/10119046483016314068noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-33786566378193430372008-03-09T06:53:00.000-04:002008-03-09T06:53:00.000-04:00I've visited your blog before, and one time tried ...I've visited your blog before, and one time tried to leave a comment, which didn't post?<BR/><BR/>I hope this comment post.<BR/><BR/>Your post is so on the mark! WELL, well SAID!<BR/><BR/> My sweet nephew Hayden-son of my dear sister suffered a brain injury during birth, and also had congenital brain abnormalities. <BR/><BR/>My family is SO BLESSED and THANKFUL that God chose us to be his family, and I am so thankful he chose my sister to be his mom. <BR/><BR/>May God continue to Bless you and your family abundantly!<BR/><BR/>In my prayers...amandahttps://www.blogger.com/profile/07835599199163769758noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-52320149213900693312008-03-09T01:52:00.000-05:002008-03-09T01:52:00.000-05:00Dear Matt, Susie and Oceana,God knew Joshua would ...Dear Matt, Susie and Oceana,<BR/><BR/>God knew Joshua would need very special earthly parents and big sister and that's why He chose you. He knew Joshua would have vey special needs and He needed parents who would care for Joshua in a very special way.Marilynhttps://www.blogger.com/profile/01421498714911478010noreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-86345324028164668152008-03-09T01:43:00.000-05:002008-03-09T01:43:00.000-05:00Hi Susie, Every now and then people blow your mind...Hi Susie, <BR/>Every now and then people blow your mind. I was going to leave a comment after reading how angry you were when meeting that other mother but your wisdom is far greater than any comment I could leave for you.<BR/><BR/>Therefore may you simply be reminded, God does not give us anything we can not endure, Joshua needed strong parents (and that does not mean to say you have to be strong all the time - God is always right there with you), God knew exactly where to look for the right parents for Joshua.<BR/><BR/>I admire your wisdom to see Joshua for more than his physical human body, many parents go through thier entire lives without realising or seeing their child's spirit.<BR/>May God continue to bless you and your family abundantly, <BR/>Love to you all,<BR/>RaeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7029247928009946691.post-37588200494058663932008-03-09T01:15:00.000-05:002008-03-09T01:15:00.000-05:00I believe we will have the opportunity to be with ...I believe we will have the opportunity to be with those we love again; and they will be whole. And those children that we lost we will be able to raise as we would have if they had survived. So, your words resonate with me. I look forward to someday meeting my grandmother on the other side and introducing her to my kids. She will be cancer-free, and all will be well again. That thought gives me a lot of comfort when I think of the time I wish we had had.Anahttps://www.blogger.com/profile/13472342143854293192noreply@blogger.com